RIP Louise 40 years together what will i do without you http://www.gonetoosoon.org/memorials/louise-page The journey begins. firstly never heard of Polymyositis, (IBM) I’ve Been in chronic pain for months and months, … Continue reading
waited a few weeks to see if i have any change in my condition after having IV IG for the second time, as of now not a lot happened chronic … Continue reading
100. Inclusion Body Myositis Daily So about 10 weeks since i had IVIG and for the first few weeks nothing happened at all that i can remember, it might have … Continue reading
IVIG its been around two months since i had IVIG and for weeks nothing happened but recently i’ve have had some pain relief in the day when trying to walk, … Continue reading
Day four of ivig I have noticed this morning that the hair loss has come back suddenly again
Today’s juice to try and help myositis.
Arrived at Sheffield hallamshire hospital what a mare today was getting here. More ivig onward upward