Inclusion Body Myositis Daily Pain / PM

Inclusion Body Myositis / Polymyositis – 24/7 Pain for 2yrs

Myositis / Inclusion Body Myositis (Myasthenia gravis ?) the journey begins

RIP Louise 40 years together what will i do without you  http://www.gonetoosoon.org/memorials/louise-page The journey begins. firstly never heard of Polymyositis, (IBM) I’ve  Been in chronic pain for months and months, … Continue reading

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106. Inclusion Body Myositis Daily Pain

Inclusion Body Myositis Drugs withdrawal. after months of feeling tired washed out no energy all day when i get up. I’ve told GP i want to come off Bedtime meds … Continue reading

February 23, 2017 · Leave a comment

105 Myasthenia gravis ? Daily Pain

Just a up date after a long period of IVIG Infusions nothing really changed so thats another option not worked. the other thing thats happened is in a morning my … Continue reading

February 23, 2017 · Leave a comment

104 Inclusion Body Myositis Daily Pain

o seen my neuro doc yesterday IVIG Not seen any improvement with this so more tests to be done im having drooping eyelids now a full body spasm and chronic … Continue reading

October 27, 2016 · Leave a comment

103..Inclusion Body Myositis Daily Pain

Inclusion Body Myositis Daily Pain coming up to my third month of IVIG Treatment and not a lot has changed really still feel as bad  as ever the pain in my … Continue reading

September 12, 2016 · Leave a comment

102..Inclusion Body Myositis Daily

  Miss you so much Louise. xxx IVIG Just had my 3rd batch of IVIG, latest regime is IVIG Once every 4 weeks  then see Doctors again got to say … Continue reading

September 3, 2016 · Leave a comment

101.Inclusion Body Myositis Daily

waited a few weeks to see if i have any change in my condition after having IV IG for the second time, as of now not a lot happened chronic … Continue reading

August 22, 2016 · Leave a comment

100. Inclusion Body Myositis Daily

100. Inclusion Body Myositis Daily So about 10 weeks since i had IVIG and for the first few weeks nothing happened at all that i can remember, it might have … Continue reading

July 17, 2016 · Leave a comment