Inclusion Body Myositis Daily Pain / PM

Inclusion Body Myositis / Polymyositis – 24/7 Pain for 2yrs

Polymyositis / Inclusion Body Myositis the journey begins & Now Widowed :(

RIP Louise 40 years together what will i do without you The journey begins. firstly never heard of Polymyositis, (IBM) I’ve  Been in chronic pain for months and months, … Continue reading

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104 Inclusion Body Myositis Daily Pain

o seen my neuro doc yesterday IVIG Not seen any improvement with this so more tests to be done im having drooping eyelids now a full body spasm and chronic … Continue reading

October 27, 2016 · Leave a comment

103..Inclusion Body Myositis Daily Pain

Inclusion Body Myositis Daily Pain coming up to my third month of IVIG Treatment and not a lot has changed really still feel as bad  as ever the pain in my … Continue reading

September 12, 2016 · Leave a comment

102..Inclusion Body Myositis Daily

  Miss you so much Louise. xxx IVIG Just had my 3rd batch of IVIG, latest regime is IVIG Once every 4 weeks  then see Doctors again got to say … Continue reading

September 3, 2016 · Leave a comment

101.Inclusion Body Myositis Daily

waited a few weeks to see if i have any change in my condition after having IV IG for the second time, as of now not a lot happened chronic … Continue reading

August 22, 2016 · Leave a comment

100. Inclusion Body Myositis Daily

100. Inclusion Body Myositis Daily So about 10 weeks since i had IVIG and for the first few weeks nothing happened at all that i can remember, it might have … Continue reading

July 17, 2016 · Leave a comment

99. Inclusion body myositis daily

IVIG its been around two months since i had IVIG and for weeks nothing happened but recently i’ve have had some pain relief in the day when trying to walk, … Continue reading

June 28, 2016 · Leave a comment

98 Hospital Day 4 Ivig and more

Day four of ivig I have noticed this morning that the hair loss has come back suddenly again

May 12, 2016 · Leave a comment