102..Inclusion Body Myositis Daily

 

Miss you so much Louise. xxx

IVIG Just had my 3rd batch of IVIG, latest regime is IVIG Once every 4 weeks  then see Doctors again got to say this time i feel rotten not with the IVIG Not had any migraine headaches Vomiting, a fellow patient not been well with IVIG Treatment, i just feel so tired just travelling  has been so hard doing nothing only walking into hospital and doom Neuro DOMS kicks in feel so tired and weak. IVIG can’t say I’ve seen any big change ill try anything to try and beat IBM But as known there’s  nothing really helps.