102..Inclusion Body Myositis Daily
Miss you so much Louise. xxx IVIG Just had my 3rd batch of IVIG, latest regime is IVIG Once every 4 weeks then see Doctors again got to say … Continue reading
100. Inclusion Body Myositis Daily
100. Inclusion Body Myositis Daily So about 10 weeks since i had IVIG and for the first few weeks nothing happened at all that i can remember, it might have … Continue reading
99. Inclusion body myositis daily
IVIG its been around two months since i had IVIG and for weeks nothing happened but recently i’ve have had some pain relief in the day when trying to walk, … Continue reading
80. Inclusion Body Myositis Daily Pain
well still at it with the sleepless nights, never tired and when i do get to sleep im in pain, then im tired all day no intention of seeing Doctors … Continue reading
69. DARE I SAY SOME Pain-relief !!!!
more tramadol and another anti inflammatory tab seem to have helped a little not the raw full one pain constantly at the minute
66. Off to the Pain Team for IBM
IBM IT IS I’m in Chronic pain daily cant stand walk get in out of bed or bath without lots of difficulty on lots of meds that arnt helping so … Continue reading
59. Polymyositis Daily Pain / IBM / Inclusion Body Myositis.
Its continues chronic pain cant stand much more nothing helps really struggling to get out of bed im frozen in a morning. standing from the seated position now a real … Continue reading
54. PolyMyositis on my Journey for Pain relief
No further forward MRI Showed no oedema and not the usual profile for polymyositis. inclusion body myositis is still the bet no real treatment or cure Another biopsy to be … Continue reading
53. PolyMyositis on my Journey for Pain relief
Awful few days if i do any walking the next day is agony but got to keep it up try and keep my muscles moving mornings are the worse pain … Continue reading
46. Myositis on my Journey for Pain relief
Lots to ponder over Docs think i have IBM Inclusive Body Myositis, NOT GOOD NEWS AT ALL. I’ve not responded in anyway to steroids, Docs dont like the shape and … Continue reading
IBM Inclusion Body Myositis 
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