IBM Inclusion Body Myositis

Myositis Disease – 24/7 Pain

#119 IBM Autonomic issues Sweating Urinating

As i have been sweating and urinating A LOT for years Docs looking at Autonomic problems ? The sweating and urinating has got bad I’m sweating and urinating A LOT … Continue reading

June 21, 2023 · Leave a comment

111 Thigh trouble

Past few weeks Ive struggled with my left leg, pain from top of my leg buttock right down to my calf and its becoming numb and I’m not able to … Continue reading

February 26, 2019 · Leave a comment

110 -IBM Life Destroying

we’ll its been a long time this Inclusion Body Myositis its really taking hold of my life 24/7 it never stops with the pain if i use or move a … Continue reading

February 25, 2019 · Leave a comment

103..Inclusion Body Myositis Daily Pain

Inclusion Body Myositis Daily Pain coming up to my third month of IVIG Treatment and not a lot has changed really still feel as bad  as ever the pain in my … Continue reading

September 12, 2016 · Leave a comment

102..Inclusion Body Myositis Daily

  Miss you so much Louise. xxx IVIG Just had my 3rd batch of IVIG, latest regime is IVIG Once every 4 weeks  then see Doctors again got to say … Continue reading

September 3, 2016 · Leave a comment

100. Inclusion Body Myositis Daily

100. Inclusion Body Myositis Daily So about 10 weeks since i had IVIG and for the first few weeks nothing happened at all that i can remember, it might have … Continue reading

July 17, 2016 · Leave a comment

98 Hospital Day 4 Ivig and more

Day four of ivig I have noticed this morning that the hair loss has come back suddenly again

May 12, 2016 · Leave a comment

91. Inclusion Body Myositis Daily

The Incurables – Joe Ferrara story   The Incurables – Inclusion Body Myositis pt 1 The Incurables – Inclusion Body Myositis pt2 The Incurables – Inclusion Body Myositis pt3

February 23, 2016 · Leave a comment

90.NHS HOPELESS Inclusion Body Myositis Daily

In so much pain the last week really fed up of this had a report from my Rheumo Doc that says I’ve been at this 3-1/2 years and im still … Continue reading

February 20, 2016 · Leave a comment

87. Inclusion Body Myositis Daily Pain / PM

Inclusion Body Myositis Daily Pain / PM not been well because of cold weather and Docs changing meds there taking me off my normal meds  and trying to replace them … Continue reading

December 1, 2015 · 2 Comments