IBM Inclusion Body Myositis

Myositis Disease – 24/7 Pain

114 Bicep Shoulder at it

Bad day yesterday up all night with Right Bicep and right shoulder pain chronic pain crazy why this muscle group causing trouble not done any thing in the previous days … Continue reading

March 13, 2019 · Leave a comment

112 IBM me and Peter Frampton

Peter Frampton and me this is a good video on how IBM Effects me and others 24/7 Peter Frampton ‘In a year’s time, I might not be able to play’: … Continue reading

February 27, 2019 · Leave a comment

111 Thigh trouble

Past few weeks Ive struggled with my left leg, pain from top of my leg buttock right down to my calf and its becoming numb and I’m not able to … Continue reading

February 26, 2019 · Leave a comment

110 -IBM Life Destroying

we’ll its been a long time this Inclusion Body Myositis its really taking hold of my life 24/7 it never stops with the pain if i use or move a … Continue reading

February 25, 2019 · Leave a comment

107. Inclusion Body Myositis Daily Pain

Update IVIG not helped so thats been stopped. pain team finished review stay on the meds i take at minute if i need more help then contact them. i’m having … Continue reading

June 14, 2017 · Leave a comment

103..Inclusion Body Myositis Daily Pain

Inclusion Body Myositis Daily Pain coming up to my third month of IVIG Treatment and not a lot has changed really still feel as bad  as ever the pain in my … Continue reading

September 12, 2016 · Leave a comment

102..Inclusion Body Myositis Daily

  Miss you so much Louise. xxx IVIG Just had my 3rd batch of IVIG, latest regime is IVIG Once every 4 weeks  then see Doctors again got to say … Continue reading

September 3, 2016 · Leave a comment

101.Inclusion Body Myositis Daily

waited a few weeks to see if i have any change in my condition after having IV IG for the second time, as of now not a lot happened chronic … Continue reading

August 22, 2016 · Leave a comment

100. Inclusion Body Myositis Daily

100. Inclusion Body Myositis Daily So about 10 weeks since i had IVIG and for the first few weeks nothing happened at all that i can remember, it might have … Continue reading

July 17, 2016 · Leave a comment

99. Inclusion body myositis daily

IVIG its been around two months since i had IVIG and for weeks nothing happened but recently i’ve have had some pain relief in the day when trying to walk, … Continue reading

June 28, 2016 · Leave a comment