IBM Inclusion Body Myositis

Myositis Disease – 24/7 Pain

#119 IBM Autonomic issues Sweating Urinating

As i have been sweating and urinating A LOT for years Docs looking at Autonomic problems ? The sweating and urinating has got bad I’m sweating and urinating A LOT … Continue reading

June 21, 2023 · Leave a comment

#118 Detached Retina

Might not be IBM related But from nowhere 3 days ago had a few floaters in vision of the left eye today from nowhere woke up and left eye 90% … Continue reading

May 12, 2022 · Leave a comment

117. sweating out of control

autonomic problems cause me to sweat and urinate a LOT, THE SWEATING is crazy now stand up move its like being stood under a shower. nuts . i have meds … Continue reading

June 11, 2021 · Leave a comment

116. Long Journey continues

Been a while since i posted had major problems with hydration from me sweating buckets on exertion and urinating a LOT Change from Mito being the only problem thats less … Continue reading

April 9, 2021 · Leave a comment

115 YouTube IBM real deal

Profiles of strength Julie and Charlie the best example of inclusion body Myositis I’ve come across

March 13, 2019 · Leave a comment

114 Bicep Shoulder at it

Bad day yesterday up all night with Right Bicep and right shoulder pain chronic pain crazy why this muscle group causing trouble not done any thing in the previous days … Continue reading

March 13, 2019 · Leave a comment

113. Numb leg

Gp yesterday had a ongoing problem of not being able to feel my left leg from top of the Thigh down and more pain. Not a lot Gp can do … Continue reading

March 5, 2019 · Leave a comment

112 IBM me and Peter Frampton

Peter Frampton and me this is a good video on how IBM Effects me and others 24/7 Peter Frampton ‘In a year’s time, I might not be able to play’: … Continue reading

February 27, 2019 · Leave a comment

111 Thigh trouble

Past few weeks Ive struggled with my left leg, pain from top of my leg buttock right down to my calf and its becoming numb and I’m not able to … Continue reading

February 26, 2019 · Leave a comment

110 -IBM Life Destroying

we’ll its been a long time this Inclusion Body Myositis its really taking hold of my life 24/7 it never stops with the pain if i use or move a … Continue reading

February 25, 2019 · Leave a comment