IBM Inclusion Body Myositis

Myositis Disease – 24/7 Pain

25. Myositis on my Journey for Pain relief

Well Pain continues nothing helps and to top if off had a phone call from Neuro Docs secretary muscle biopsy is in TWO MONTHS TIME. PAINRUS

May 26, 2014 · Leave a comment

24. Myositis on my Journey for Pain relief

Well after a better day yesterday, pain is back with a vengeance Right leg and foot swelled the redness on both legs goes from my toes to above the knee. … Continue reading

May 22, 2014 · Leave a comment

23. Myositis on my Journey for Pain relief

Dermatomyositis thats where everyone is going, well they want to get on with sorting some specific treatment out because this has drove me crazy for months on end now, the … Continue reading

May 19, 2014 · Leave a comment

22. Myositis on my Journey for Pain relief

had a Neuro report meds need to be changed to try gabapentin. i have a neuromyopathic problem, evidence of electrophysiology of small motor unit, muscle disorder with fibrillation potentials consistent … Continue reading

May 16, 2014 · Leave a comment

21. Myositis on my Journey for Pain relief

Docs again yesterday another set off blood results back, all normal kidney, liver etc counts levels etc never been in so much pain, feet ankles swelled legs feel like lead … Continue reading

May 13, 2014 · Leave a comment

20. Myositis on my Journey for Pain relief

Well tried some pictures Saturday enjoyed it, but boy did i suffer for nearly 2 days. no pain no gain arghh fed up of pain pain things still not improving … Continue reading

May 12, 2014 · Leave a comment

Myostatin Drugs to Rebuild Muscles Being Tested

Myostatin Drugs to Rebuild Muscles Being Tested A new wave of myostatin drugs in or nearing clinical-stage testing could make a significant impact on the ability to build muscle in … Continue reading

May 9, 2014 · Leave a comment

19. Myositis on my Journey for Pain relief

well feet are like ballons now, that has come from nowhere, its not painful juat another obstacle in the way stopping me walking, i cant walk at the best of … Continue reading

May 9, 2014 · Leave a comment

18. Myositis on my Journey for Pain relief

another day another day in pain i was at Hospital yesrterday Endocrinology are in on the act trying to sort me out, told them the story and asked for more … Continue reading

May 7, 2014 · Leave a comment

17. Myositis on my Journey for Pain relief

NO Sleep tonight 9 months of this crap. and still no 100% diagnosis and no treatment at all yet from a hospital. NHS Epic Fail

May 5, 2014 · Leave a comment