IBM Inclusion Body Myositis

Myositis Disease – 24/7 Pain

39. PolyMyositis on my Journey for Pain relief

Been on 80mg of prednisone a week now no change except the insomnia has kicked in i cant sleep a few hours at most no matter how tired i am, … Continue reading

July 24, 2014 · Leave a comment

38. PolyMyositis on my Journey for Pain relief

PolyMyositis A Bad night for some strange reason my feet woke me up killing me feet swelled, the knee joints are still my biggest problem i’ve all ways had chronic … Continue reading

July 21, 2014 · Leave a comment

37. PolyMyositis on my Journey for Pain relief

Day Four maybe a slight change in the pain or the usual bit of relief because im not moving or doing a thing physically at all, just go with the … Continue reading

July 20, 2014 · Leave a comment

36. PolyMyositis on my Journey for Pain relief

Day Three of PolyMyositis Diagnosis nothing changed yet the pain is horrific getting worse, i go back to see the specialist in 2 weeks he should have the TPMT enzyme … Continue reading

July 19, 2014 · Leave a comment

35. Myositis on my Journey for Pain relief

http://www.bmj.com/content/344/bmj.e1181 uncanny ^^ http://mda.org/disease/polymyositis/medical-management#chart problems ahead

July 17, 2014 · Leave a comment

34. Myositis on my Journey for Pain relief

Biopsy results are in POLYMYOSITIS Is the Pain of Hell now the full diagnosis journey begins. 80mg of steroids daily to begin.

July 16, 2014 · Leave a comment

CONSIDER THIS: The Good, the Good and the Good

Twenty-one years is a long time to be in pain, and yet Janet Mata has lived it as a badge of honor. Afflicted with a muscular dystrophy disease called dermatomyositis … Continue reading

July 15, 2014 · Leave a comment

33. Myositis on my Journey for Pain relief

Biopsy Results are in, 10 months of pain i hope this is the final hurdle to getting some help from chronic pain, fatigue, and if this doesn’t show anything i … Continue reading

July 15, 2014 · Leave a comment

32. Myositis on my Journey for Pain relief

Stitches out today no problem the biopsy went ok i did think it would be a small needle type biopsy rather than a cut and deep muscle biopsy, but the … Continue reading

July 7, 2014 · Leave a comment

31. Myositis on my Journey for Pain relief

Well nearly a week since the biopsy and the strange thing is that the pain in the knee near the biopsy got worse a few sleepless night the biopsy seems … Continue reading

July 3, 2014 · Leave a comment