103..Inclusion Body Myositis Daily Pain

Inclusion Body Myositis Daily Pain

coming up to my third month of IVIG Treatment and not a lot has changed really still feel as bad  as ever the pain in my hands is getting worse especially my thumbs they are so painful in a morning and cramped  and having full body twitches when tired and laid down DOMS is particularly bad when doing anything a day or two after I feel shocking so tired and washed out. bloody awful condition if you have it with the pain, I still think this is genetic with my and my daughter’s immune system problems her CHRONIC ITP and her Spleen removal now her liver problems.